On this Monday, here are a few things I'm glad about....
I'm ever so glad and thankful that Lily is alive.
I'm glad to be able to sleep in my own bed at night.
I'm glad for oxygen concentrators, the vest, neb machines, and the ultimate in stethoscopes.
I'm glad to know that the nurse at our pulmonology office (B) is only a short email away! (She was on vacation last week and is back today).
I'm glad that the rest of my family is mostly feeling better again.
I'm glad we were all able to rest so much over the weekend.
I'm glad my husband has such a great job and an awesome boss who allowed him to take off the time he needed while Lily was in the hospital.
I'm glad my IL's were able to come and stay with Mark and the girls while I was in the hospital with Lily.
I'm glad for so many friends and family members, and people I've yet to meet in real life who have prayed for us and cared for us during this time. Each one of you holds a special place in my heart, and I don't know how to thank you enough!
**And, I'm glad, glad, glad no one in my house has lice!**
I'm sure I could come up with a million other things to be glad about too, but I'll stop for now.
To give you a quick update on how things are going here...
If you don't follow me on FB, you probably don't know that Lily was confirmed to have H1N1 and pneumonia. She was discharged last Thursday, with instructions to come back if her breathing effort worsened. We took her off O2 completely on Thursday, and Lily spent the entire day in room air. That evening, her O2 sats were dipping, so I fired up the concentrator. After 10 minutes of running, it alarmed "call for service." I tried again with the same results. By this time, I had hooked Lily up to an O2 tank, which isn't my favorite solution, but it's better than no oxygen. I called the DME company (durable medical equipment), and they agreed to come out in the morning (Friday) with a new concentrator.
Our vest set-up arrived from Hill-ROM on Friday, and we've been using it ever since. I love it, but Lily doesn't. Although, I did adjust the settings, so they aren't quite as aggressive as they were in the hospital, which has helped with her tolerance.
Lily has been on anywhere from 1L of O2 all the way up to 5L (which is what she is on right now), and her sats are in the low to mid 90s. We are still doing nebs 4-5 times a day. Last night (technically this morning since it was 2 am) Lily had a coughing spell with de-sats that lasted for over an hour. I gave her 2 nebs and finally a popsicle to help calm her croupy cough and soothe her poor throat. I'm glad we were finally all able to sleep for a few more hours.
**After I finally fell asleep again, I dreamt about lice. My head still itches just thinking about it.....maybe you had to be there....or just be glad you weren't!**
